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University of Pennsylvania
Center for Autism Developmental Disabilities Research and
Epidemiology
Study on the Psychosocial Health of Siblings of children with an
ASD
To All
Parents of a Child With ASD:
Would you be
interested in assisting the psychological well being of siblings
of children with an ASD?
My study
investigates which factors of the siblings’ relationship and
family situations relate to better psychological health among
siblings of children with an ASD.
Participation: In order to participate in this study,
one parent will need to complete written questionnaires
about the child with an ASD (ie. Diagnosis, number of therapies)
and the family (ie. number of children, degree to which child
with ASD interacts with his/her sibling).
One
sibling will be asked to talk about his brother or sister
with an ASD during a telephone interview (ie. Describe
positive qualities about this sibling, type of interactions,
etc.).
Requirements:
-
One
English speaking parent of a child with an ASD. This
parent will complete a written questionnaire.
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One
parent must be a member of an autism support group,
listserve, or similar autism support group
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One
English speaking sibling of a child with ASD. The sibling
must be able to orally respond to questions written at a
second grade level. This child will respond to questions
during a telephone call.
Most often,
research studies require information from the parent or child
with an ASD. This is a GREAT opportunity for your child to
receive attention that is normally provided to his sibling with
an ASD and express feelings that are rarely addressed. The
sibling with speak to a trained interviewer with experience with
all members of ASD families. However, parents may listen to
these telephone calls.
If you have
any questions, please feel free to contact the researcher and
interviewer: Alison Weissman @
aweissma@nursing.upenn.edu
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