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504, Idea,
Advocacy and Problem Solving
Copyright 1999 © Roger
N. Meyer
[The following essay appeared
in two parts to a subscription Email list for parents with HFA/AS
children and adults with HFA/AS. Comments about the law are not
intended to be "legal advice." Anyone wishing further information
about the laws referred to should consult an attorney experienced with
special education law in their state.]
DIFFERENCES BETWEEN IDEA AND
SECTION 504
Section 504 tended to be in use in
the late 1970's through the 1980's, when the first weak version of the
present IDEA was in force. As more and more court decisions and
interpretations of the regulations for special education for disabled
children began to be made, the 504, or non-discrimination protections
of the Vocational Rehabilitation Act of 1973 (which protect anyone
from discrimination by any program receiving federal funds) found less
and less favor. A law that merely forbids discrimination but says
nothing other than that a child is entitled to a Free Appropriate
Public Education (FAPE) really provides no guidance to the parent or
to the schools.
That's why IDEA was passed, because
instead of prohibiting conduct, it mandates and prescribes conduct. It
also clothes the student and the parent with due process rights not
available under Section 504, and very specific and detailed rights at
that. Fair Hearing officers, hearing cases under section 504, are
guided by what has been applied to that law primarily, but they also
use IDEA decisions regarding a particular issue raised in the 504
complaint. The more enlightened ones will order the schools to
determine the child eligible for special education under the terms of
IDEA. These hearing officers are rare, because Section 504 hearing
officers are employees of that very school district they are ordering
to do something. Do you see more than a little conflict of interest
built into this arrangement?
Well, so did Congress, and that's why
it has crafted a law with identified rights of due process,
requirements for neutrality by mediators and IDEA hearing officers and
staff training in special education law. Following the passage of IDEA
1997, the Department of Education issued a huge training manual with
slides, overheads, and the whole shootin' match for educational
administrators and teachers involving the IDEA, its regulations, the
state laws and state regulations all dealing with the same topic,
timelines, schedules, and required actions to be performed by specific
persons.
IDEA establishes and enumerates a
vast number of civil rights for students and parents, and affirmative
responsibilities of the schools.
IDEA 1997 mandates certain kinds of
evaluation procedures. It includes the parent at every stage of the
eligibility (evaluation) and planning stages (IEP Team meetings) and
outlines the student's right to participate in matters affecting his
IEP as well as discipline and other related special education issues.
IDEA specifies who is responsible for what, and establishes an order
of authority as a guide for state educational laws. It outlines
specific local education agency and state eligibility criteria to be
met before they receive and/or continue to receive federal funding.
Finally, the IDEA outlines a very specific protocol as to how IEP's
are to be completed, as well as very tight language regarding disabled
student discipline (of all kinds). If a school skips or reverses a
step in the IEP process, judges and hearing officers have found this
"minor administrative error" (as the schools want to call it)
sufficiently significant enough to nullify the IEP in its entirety.
Section 504 has none of that.
504 can be swifter in the hearing
process, but there is less guarantee of a fair and impartial hearing
with a resultant outcome which respects the civil rights of the
student and the parent. Lawyers use Section 504 in combination with
IDEA to hold the punitive sword of monetary damages against a school
district that blatantly and deliberately violates the due process
rights of its students and parents, or otherwise interferes with
student and parent rights to exercise their rights under IDEA or have
unhindered access to the due process protections of IDEA.
Since the Americans for Disabilities
Act came along in 1990, parent/student rights attorneys have been
given additional leverage, since it, too, identifies specific rights
of a disabled person, with the burden of proof rests on the school to
show that it did NOT discriminate against a disabled person or did NOT
violate his civil rights. Schools realize the danger of being caught
in an ADA suit, because they rarely, if ever win. If the child can
demonstrate discrimination (not too hard to do) or denial of civil
rights (again, not hard to do), the school has to go a very long way
uphill to justify or defend such a practice. Schools usually fold or
settle these complaints, and an ADA settlement, if violated or not
honored by the consenting party, is subject potentially heavy court
punishment including imprisonment and hefty daily fines until a
situation has been rectified.
504 is fuzzy about all of this, but
it lends weight to the credibility of the student or parents'
complaint if violations under the general --but not enumerated-- civil
rights educational provision under 504 are found. Even if the judge
finds some minor technical violations or non-compliance, the very
pattern of consistent non-compliance or the character of the
violations can again result in a severe reprimand to the district, and
orders to immediately correct the discriminatory condition, and
provide compensation in money for lost service or lost education. In
particularly egregious cases, the due process hearing officer, the
state review (appellate) agency or a state or federal court CAN order
the district to place the child in an appropriate environment out of
district, out of state, and to pick up the entire cost for that
placement.
As of the date of this writing
(February 15, 1999) the US Department of Education has yet to issue
the regulations interpreting IDEA 1997. Much of the confusion
regarding the benefit or limitations of using Section 504 can be seen
in the conflicting rulings of Federal Circuit Courts of Appeal,
regarding the degree to which 504 has been "absorbed" by the later
IDEA 1997, and whether standards for provision of FAPE mean the same
under both laws and under the unreleased federal regulations.
Under both laws, it is virtually
impossible to collect "punitive" damages against a particular person
or school district. All the decisions in most of these cases do is
provide the student with mandated services refused by the district,
and either compensatory hours of education or amounts of money to the
parent designated for such "make up." The prevailing parent is to be
awarded "reasonable attorneys fees," but many attorneys have been
burned when the district or losing party withholds those monies. This
leaves it up to the attorney to chase the district down in a separate
due process or civil court proceeding for those moneys alone. Young
attorneys, finding such realities early in their special education
practice, refuse to take these kinds of cases knowing of the delay
involved in being compensated. In a few cases, the attorneys have been
awarded NO professional fees at all, and although eventually
corrected, the amount of money and time they spend to do so sours them
on the entire special education experience.
It is no wonder that the ratio of
school-paid lawyers to private-market plaintiff attorneys is about
fifty to one. There's little money in it. The irony of this situation
is that school attorneys often don't even have to know much about
special education law. They can use "lawyer tactics" to obfuscate,
delay, and confuse the parent in such ways that parents often back
down when first encountering this wall of lawyers. Much of their
approach to parents is bluff, and some tactics used by such attorneys
are unethical and illegal. Parents, desperate to see to their
children's' education, rarely have time to tilt against such
windmills.
THE REALIITY OF THE
PRACTICE OF SPECIAL EDUCATION LAW BY ATTORNEYS
There is another built-in barrier
against fairness in this whole circus of lawyers and due process.
Parents are free at any time to settle with the school authorities, as
they should be. The reality of this, however, is that the parent,
utterly exhausted by the process so far, is often willing to settle
with a district finally offering what the parent wanted in the first
place, or even a little less, just to get on with their lives. This
means that the lawyer, who by this time has spent eighty to a hundred
and fifty hours on the case (getting it ready for due process) gets
little or nothing for his time and expenses. Most parents don't
realize that if and when they settle BEFORE a legal hearing, that the
attorney cannot petition the court or hearing officer to pay for
attorney' s fees, because as far as the hearing officer or judge is
concerned, the parties have settled privately outside of the formal
judicial or administrative law process.
This means that IF the school
district offers to pay parents their attorney's fees as a part of the
settlement, it can do so. But it isn't required to either make the
offer or make good on its promise, because the district is promising
to pay a third party with which it has no direct contractual
obligation to compensate for services rendered.
Many school districts routinely
renege on this part of the settlement, so unless the parents feel duty
bound to pay the attorney (and they should), the lawyers get nothing,
or very little for all that time. Can you imagine what any special
education attorney feels like when he or she is approached by a parent
whose previous settlement with the school has completely fallen apart,
AND the parent had either dismissed their previous lawyer or not paid
him or her? A naive attorney may take the case on not realizing what
has happened in the past, but many experienced special education
attorneys (remember, there are just a few of them in any one area)
blacklist such parents because (1) they didn't follow their counsel's
advice about a settlement offer; (2) may be bad risks for payment of
fees; and (3) are known as "bargain-hunters" or "tire-kickers" in the
"used lawyer market." Only this time THEY have used the lawyers and
are looking at "another chance."
That's the reason why most special
education lawyers refuse to accept a case on a contingency fee basis.
Unless they have a large practice where they can allow all of these
expenses to be "carried" by their other accounts, they end up with
ZIP. Only a few of them will practice out of state, and many refuse to
do "phone" work for the same reason. This entire scheme is brutally
unfair to parents without the resources to foot the cost of a lawyer
on their own.
THE CHALLENGE OF
ADVOCACY
I'm no lawyer, but believe me, as an
advocate, I want a client's assurance that they will stick with the
case or at least pay me for my time and my expense.
It is funny how many parents are
incensed at realizing they have to pay someone to protect their
child's rights, and surprised that the public advocacy and
representation services which are tax supported will not or cannot
take their case. The fact is that all of those Protection and Advocacy
centers (known as P&A's)) are overworked, and often have a single
attorney to cover matters for the entire state. Volunteers and student
lawyers staff many of the centers, but when it comes to crunch time,
the centers have to pay their own staff attorney or community contract
attorneys for representing a client. They often end up being very
selective in their choice of cases to be handled, so the overflow of
cases they cannot manage reverts to the private legal and advocacy
market. This has become especially true with cases involving autistic
children. Autism, especially high functioning autism and Asperger
Syndrome is the fastest growing category of complaints filed against
school districts and state educational agencies. For special education
attorneys, autism presents an unusually difficult disability to
represent, since many attorneys have none of the specialized knowledge
about autism that their parent clients possess.
Lawyers and advocates often have to
urge their clients not to go for the whole banana at the first IEP
meeting, or even the second or the third. Just having an attorney
present at an IEP meeting charges the entire atmosphere with an
element of formality and adversarial argumentation often causing a
hardening of positions by all parties. " Winning" is a progressive
process, and it shouldn't involve a knockdown drag-out fight at every
IEP meeting. The whole idea of the process and the involvement of an
advocate is for parents AND the school folks to learn how to work
together. In this regard, I am as much an educator as an advocate. In
every meeting I've had so far involving parents and school folks, I
bring the same educational material for both parties. To a great
extent, my "job" is to work myself out of the job so that the parent
knows how to handle things on his or her own and not remain dependent
on others in asserting their rights and reminding the school of its
duties.
On the last weekend of January, 1999,
there was a three-day conference in San Diego involving professional
attorneys and parent advocates discussing precisely this dilemma and
the other issues I have raised above. I wasn't able to attend; my
choice was between going or getting a laser printer for handouts and
reprinted articles for parents, educators, and counselors. I chose the
latter, because dissemination of information may, in the long run, be
a better way of approaching these challenges than training individuals
who are already experts and seasoned in the field of advocacy.
Yes, parent education takes time, but
the one thing I personally don't have either the time or money for is
to take on a client whose learned dependency and sense of "victimhood"
is so profound that the client will ALWAYS look to others for help.
This is especially so when they've been shown the ropes and have
actually climbed them a couple of times under tutelage.
One of the great tragedies of this
kind of work lies in the realization that many parent clients are
themselves on the spectrum, sometimes more profoundly impaired than
their children. You can easily see how parent advocacy spills over
into personal counseling and "therapeutic" work with the on-spectrum
parent. That's the reason I am especially interested in having marital
and couple counselors, as well as professional therapists educated
about HFA/AS, because as crippling as it may be for a child, to have a
parent not knowing how to handle things for himself or herself, let
alone work with the kid makes the parent interface with the special
education system especially challenging.
There is an additional challenge to
parents and advocates in their dealings with the special education
system. This issue concerns judgment, use of time, and exhaustion of
resources halfway to a destination. The challenge centers on what can
be accomplished every time an advocate or a lawyer is called upon to
defend a parent and student's rights. Many parents want all the past
wrongs righted at once. They want the whole banana. I am in sympathy
with them, believe me. Readers here have often noted that I have poor
boundaries when it comes to compartmentalizing issues or topics. This
very post is an example of that.
Most folks, including myself, don't
recognize the "gag factor." They have their hearts set on settling the
whole score all at once. When we deal with institutions, such as the
schools, or a business, or any other entity involving more than a
single person, many of us want to take the whole thing down. In one
stroke. Organizations, just like individuals, take time to learn. They
are resilient. They also have institutional pride and a sense of
mission. They will resist efforts to change everything all at once. If
you think about it for a second, most of us do, too.
Some of what is due our kids and
ourselves as parents can't and won't be available all at once, or as a
whole package. Not right away. One can't expect a puppy to be
housetrained with one firm "no" and leave it at that. As an advocate,
I am duty-bound to represent the parent(s) in any way they feel
comfortable, and to take on only those duties and responsibilities
they assign me. I also feel a moral obligation to look out for their
child's long-term interests and for the family or parent(s) capacity
to survive future skirmishes with the system.
The following three paragraphs refer
to mediation, which is actually what most IEP meetings "need." I see
my role as much a mediator as an advocate, because I want a good
process, once set in place, to be the basis of future conflict
resolution between the parents and the school authorities.
Most conflict arises because the
parties see things different ways. In order to arrive at a meeting of
minds, I encourage them to demonstrate their problem solving
techniques before one another so the other appreciates what it "takes"
for the other person to understand that there is even a problem there
in the first place. Once both of them "see" the problem, it is
possible for them to consider how to solve the problem. Doing so
involves each of them being on the same page at each step of the
problem-solving process. Rushing ahead to a conclusion by one while
the other is left behind in the dust doesn't work. They needn't agree
on everything. That isn't the point.
The point is that each party has
"learned" how to resolve a problem with another party who approaches
problem solving in a different way. If this realization can be
embodied in the IEP itself (and it can), future IEP Team experiences
could involve the same approach of keeping the parties on track,
addressing a single issue at a time, no "backtracking" or rumination
on things already reviewed and resolved, and active listening. Bottom
lines can be clearly identified, actions and consequences can be
discussed, and "fall-back positions" can be constructed into an
agreement allowing parties headed for escalation of a disagreement to
each retire to a neutral corner, or decide to proceed with other
issues first.
Blindness to this very process of how
each person or institution solves problems differently is why most
issues remain "stuck" in special education disputes.
The end product in a successful IEP
meeting and advocate involvement in the process for parents as well as
the educators is that the advocate can then begin to back away from
the process in succeeding meetings.
One caveat, though.
One "victory" does not end a "war."
No general retires her troops following a victory, because she knows
that right around the bend is another opposing army mustering for
battle. Vigilance and awareness of future challenge is what parent
understanding of the law and their parental rights are all about.
The exhilaration a parent feels at
having won one round of a special education fight often dissipates in
the face of each succeeding round. That not need be the case,
especially when different ways of resolving problems exist. It is rare
that a school district or "the system" rolls over and plays dead for
the rest of the time the child is enrolled. As we've all seen on the
ASPERGER list, many parents have a chest full of medals, of purple
hearts as well as "victory" medals. Our learning from one another here
puts us in the best school of all.
And, it is a school for life.
With all of the above said, I'd like
to return to the original purpose of this posting. There are laws and
then there are laws. There are good ways to get things done, and then
there are muddle-through ways. Before 1997, the parent and child had a
fair chance at doing well under either law, but coming out with a
bigger prize bag under IDEA. Now, there is no comparison, and the use
of 504 has been more recently used for the filing of complaints for
discrimination and attorney compensation, both of which are critical
to keep the system running. This is an imperfect system that is
running, but it may be wiser to change it rather than scrap it,
especially in light of what is currently going on in Congress and many
state legislatures. These laws were crafted at a time when differences
between contending interests could be resolved with a modicum of
civility and respect.
There is nothing other than pride
that prevents contending parties from shaking hands. Arrogance and
pride in public places, whether it be legislatures, or found in the
behavior of public school authorities towards their students and
parents spells danger for the social contract that legitimizes both
institutions. It appears as though it may be up to parents to remind
their childrens' educators of the basic rules of civics which the
schools teach but often fail to practice themselves.
© Copyright 1999
Oregon Parents United Unless Otherwise Noted
All Rights Reserved
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