Autism Support Groups

Autism, Asperger, PDD, and Other Related Social & Support Groups
http://www.geocities.com/srsr12/autismasperger.htm

Autism Training and Support, Inc.
POB 41995
Eugene, OR 97404
541-689-2327 phone
541-689-2623 fax
http://www.autismtraining.com/
info@autismtraining.com

Autistic Children's Activity Program (ACAP) Portland Metro Area
Executive Director: Rosemary Chapman
Phone number: (503) 649-2066
Fax: (503) 649-9228
email: crfcm@aol.com
PO Box 4606
Portland, OR 97208
503-284-0350
http://www.autism.com/acap/

Autistic Disorders, Pervasive Developmental Disorders
and Related Conditions - Parents and Caregivers Support Group
Leslie Carter, PH.D.
Lcarter@inetarena.com
9735 SW Shady Lane, Suite 304
Tigard, OR 97223
Meets 7:00 - 8:30 p.m. the 1st Friday of the month

Autism Society of Oregon
P.O. Box 13884
Salem, OR 97309
(888) AUTISM-1 (toll-free)
and (503)234-5729 (in Portland)
Support Groups listed by region
http://oregonautism.com/

Bend Redmond Asperger Syndrome Support (BRASS)
22980 Donna Lane
Bend, Oregon 97701
541-420-1562
E-Mail: Linda@co-brass.com
Web: http://www.co-brass.com

Brain Injury Association of Oregon
1118 Lancaster Drive NE, PMB-345
Salem, OR 97301
(503) 585-0855; (800) 544-5243 (in OR)
E-mail: biaor@open.org
Web: www.open.org/biaor

Bridges Advocacy and Outreach Center
Julie Miles & LeeAnn MacDonald
P.O. Box 371
Bandon, OR 97411
(541) 297-7328; (541) 297-5542
E-mail: julie@bridges-advocacy.org or leeann@bridges-advocacy.org
Web: www.bridges-advocacy.org
We are a non-profit foundation created to empower families of children with special needs to effectively advocate for quality services and education.

Center for the Study of Autism
http://www.autism.com/

Center on Human Development
University of Oregon
901 E. 18th Avenue
Eugene, OR 97403
(541) 346-3591

Child Development & Rehab. Center
Oregon Health Sciences University
P.O. Box 574
Portland, OR 97207-0574
(503) 494-8362
E-mail: sellsc@OHSU.edu
Web: http://cdrc.ohsu.edu/

Community Partnerships Project
Sharon Lewis
Phone: Portland 503-756-1214
Email: slewis@easystreet.com
The Community Partnerships Project (funded by the Oregon Council on Developmental Disabilities) provides a statewide network of advocates interested in issues important to people with developmental disabilities. Trainings in public policy advocacy are available.

Early Intervention/Early Childhood Special Education Dept.
Department of Education
255 Capitol Street N.E.
Salem, OR 97310-0203
(503) 378-3600, ext. 2331
Web: http://www.ode.state.or.us/

Eastern Oregon Regional Crisis/Diversion Program
17 SW Frazer, Ste 301
Pendleton, OR 97801
Telephone: 541-278-8668
E-mail: susan_l._purcell@class.oregonvos.net
Web: http://www.eoddr.com
A website about resources in Eastern Oregon--for people with developmental disabilities and their families and friends and the people who support them

Easter Seals Oregon
5757 S.W. Macadam Avenue
Portland, OR 97201
(503) 228-5108 (V/TTY)
E-mail: bhamilton@oregonseals.org
Web: http://or.easter-seals.org/site/PageServer?pagename=ORDR_homepage

Epilepsy Foundation of OR
619 S.W. 11th Street, Suite 225
Portland, OR 97205-2646
(503) 228-7651; (888) 828-7651
E-mail: jill@epilepsyoregon.org
Web: www.epilepsyoregon.org

Family Voices is a national grassroots network of families and friends on behalf of children with special health care needs
http://www.familyvoices.org/st/OR.htm

FEAT of Oregon (Families for Early Autism Treatment of Oregon) advocacy and education on Lovaas ABA
PO Box 69064
Portland, OR 97201
503-968-2137
http://feator.org/index.php

Fragile X Association of Oregon
PO Box 17727
Salem, OR 97305
503-364-9463
503-620-3473

GFCF Diet Support Group
Juli Mendenhall
JULI_MENDENHALL@MSN.COM
Oswego Heritage House
380 10th St., Lake Oswego, OR 97034 
Meets at 7 p.m. every 3rd Thursday of the month

H.A.N.S.
Help Autism Now
Salem, Oregon
talktome@helpautismnow.com
http://www.helpautismnow.com/

Kathy and Calvin’s Home Page / Supporting Oregon Parents of children with autism
http://kathyandcalvin.com/

Mental Health Association of Oregon
620 S.W. 5th Avenue, 5th Floor
Portland, OR 97204
(503) 243-2081; (800) 452-1694
E-mail: mhaoregon@aol.com
E-mail: mhaoregon@oradvocacy.org

Mental Health & DD Services Division
Department of Human Services
2575 Bittern Street, NE
Salem, OR 97309

NAMI-Oregon
2620 Greenway Drive, N.E.
Salem, OR 97302
(503) 945-9499; (503) 945-9774
(503) 370-7774; (800) 343-6264
E-mail: namior@aol.com

National Information Center for Children and Youth with Disabilities 
NICHCY of Oregon
PO Box 1492, Washington, DC 20013-1492  
http://www.nichcy.org/stateshe/or.htm
Toll Free: 800/ 695-0285
Fax: 202/ 884-8200

Northwest ADA and IT Center
Oregon Health Sciences University
PO Box 574
Portland, Or 97207-0574
(503) 494-4001 (V) ; (800) 949-4232 (V/TTY)
E-mail: nwada@ohsu.edu
Web: http://www.nwada.org

Northwest Autism Foundation - NWAF
519 15^th Street, Oregon City, OR  97045
Tel: 503/ 557/2111
www.autismnwaf.org   

Northwest Neurodevelopmental Training Center
P O Box 406
152 Arthur Street
Woodburn, OR 97071
Phone: 503-981-0635
Fax: 503-981-6435
Email: nntc@open.org
http://www.open.org/~nntc/

Northwest Rett Syndrome Foundation
PO Box 1035
Oregon City, OR 97045
503-650-7388

NSpEd-Network for SPecial EDucation

OR Autism - for anyone whose life is affected with a loved one with autism.

Oregon Brain Injury Resource Network
345 N. Monmouth Avenue
Monmouth, OR 97361
(503) 585-0855; (800) 544-5243
E-mail: tbi@wou.edu
Web: www.tr.wou.edu/tbi

Oregon Clarion
Michael T. Bailey
4265 NE Halsey, Suite 817
Portland, OR. 97213
E-mail: mtbclarion@comcast.net
http://www.ocdd.org/clarion.htm

Oregon Department of Education
255 Capitol St NE Salem, OR 97310-0203
Phone: (503) 378-3569 TDD: (503) 378-2892 Fax: (503) 373-7968
http://www.ode.state.or.us/

Oregon Department of Education Office of Special Education
(503) 378-3598 V; (503) 378-2892 TDD
Fax: (503) 373-7968
http://www.ode.state.or.us/sped/index.htm

Oregon Developmental Disabilities Council
540 24th Place, NE
Salem, OR 97301-4517
(503) 945-9941; (800) 292-4154 (in OR)
E-mail: ODDC@aol.com
Web: http://www.oddc.org/

Oregon Disabilities Commission
1257 Ferry Street SE
Salem, OR 97310
(503) 378-3142 (V/TTY); (800) 358-3117

Oregon Home Schoolers e-mail list - Send an e-mail to orsigsubscribe@yahoogroups.com

Oregon Institute on Disability and Development
OR Health Sciences University
P.O. Box 574
Portland, OR 97207-0574
(503) 494-8364
E-mail: oidd@ohsu.edu
Web: www.ohsu.edu/cdrc/oidd

Oregon Kind Tree Productions, Inc. - Serving & Celebrating the Autism Community - autism, autistic art, autism news, autism links, autistic greeting cards and books, autism chat, autism newsgroup, Kind Tree Autism Events, and more...  - Eugene, Oregon

Oregon Parent Training and Information Center
Janice McLaughlin-Morrow, Director
1745 State St
Salem, OR 97301
888-505-2673
503-581-8156
Fax 503-391-0429
Email: orpti@open.org
http://www.open.org/orpti

Oregon Technology Access for Life Needs Project
Access Technologies Inc.
3070 Lancaster Drive NE
Salem, OR 97305-1396
Phone: (800) 677-7512 (V/TTY, In-State); (503) 361-1201 (V/TDD)
Fax: (503) 370-4530
E-mail: ati@oregonvos.net
Web: http://www.accesstechnologiesinc.org/

Oregon UA Reps for 2003-2004 Plus information on Unlcoking Autism and what we do!

Pacific Northwest Adult (Asperger/High Functioning Autism/Other Related) Support Group over 18 -Meetings held every 1-3 months Meetings held at varying locations Seattle-Portland-Eugene (mainly Portland Metro Area). Possibly Eugene, OR - Vancouver, B.C. and points between.
http://www.geocities.com/srsr12/autismasperger.htm

Parents of Autistic Children (POAC)
Contact: Kathy Harris
http://www.kathyandcalvin.com/poac-or/
poac@poac-or.org

Portland AS Network - online e-mail list - The group meets the second Friday of each month (some variation around holidays), 6:30-10 p.m., at West Linn Lutheran Church, 20390 Willamette Drive, West Linn, Oregon. Children learn social skills while playing games and parents share information and experiences. Free, but donations gladly accepted. Potluck snacks and beverages. Game Club - A monthly video and board game party for AS/HFA children age 5-18.

Society for Auditory Intervention Techniques [SAIT]
P.O. Box 4538
Salem, OR 97302
USA
http://www.up-to-date.com/saitwebsite/index.html

State Advisory Council for Special Education (SACSE)
Contact Person: Valerie Miller
valerie.miller@state.or.us

State Services for Autism
Department of Education
255 Capitol Street, NE
Salem, OR 97310-0203
(503) 378-3600, ext. 2336
E-mail: jay.gense@state.or.us
Web: http://www.ode.state.or.us/

The Autism Connection
William Shaffer
P.O. Box 413
Myrtle Point, Oregon 97458
PHONE: (541) 572-5525
EMAIL: autism@williamshaffer.org

Threshold - Autism Programs & Training Services
Salem, Oregon (503) - 375-9462

Voc. Rehabilitation Division, Dept. of Human Services
500 Summer Street, NE-E87
Salem, OR 97301
(503) 945-5880
E-mail: sally.s.zuelke@state.or.us

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OREGON'S PARENT TRAINING
AND INFORMATION CENTER

Oregon Parent Training and Information Center (PTI)  [formerly known as COPE]

Oregon Parent Training and Information Center (PTI) is the nationally mandated state Parent Training and Information Center serving parents of children with disabilities..  They currently have 7 regional coordinators geographically dispersed throughout the state, but their main office is located in Salem at 1745 State Street.  They also provide:

• Bimonthly newsletter
• Enhanced Cultural Outreach
• IEP Partner Training and Matching
• Information and referral
• Lending Library of videos and books
• Monthly E-mail List of Trainings in Oregon
• Self Advocate Transition Training  
• Special Education HELP LINE
• Statewide Conferences - WAGONWHEEL and Avoiding Future Shock
• Training on a variety of topics related to children with disabilities
• Technical assistance over the phone

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NOTES ON SACSE 2004-2005 Roster
 

Mandated by IDEA 1997 and state law, each state must have an advisory council comprised of educational officials and parents. A majority of the list must be parents. The purpose of the council is to assist the Superintendent in shaping special education policies assuring effective delivery of services to special education students. This is a new body, expanded in number and scope from previous advisory councils. Its members are appointed by the Superintendent, serve a maximum of two terms, and serve in rotating one, two, and three year terms during the first triennium since its founding. Each year since 1998, individuals have been appointed for either a one, two or three year initial term, assuring an annual rotation of membership in the future.

The state roster does not include detailed contact information for its members, yet parents in the State of Oregon are expected to play an active part in providing information this council and its members. OPU encourages parents to contact individual advisory council members whose interests or location are convenient to them, and to raise issues that then can be addressed in the quarterly, annual, and committee meetings of the council.

In the past, public presence at the regular meetings of this council has been dismal. By providing this contact information, OPU hopes that parents will now have a "handle" and a name and face they can attach to their concerns in seeking persons of influence in the state special education system. There is a calendar of events and the dates and locations of regular meetings can be secured by calling the state employees whose names appear at the top of the list. Some calendared information appears on their web site (see above).

The website address for the Oregon SACSE is:

http://www.ode.state.or.us/search/results/?id=251

CONTACT PERSONS FOR QUESTIONS REGARDING COUNCIL AFFAIRS:

Valerie Miller
email valerie.miller@state.or.us

• SACSE Membership Application 
• Annual Report 
• Calendar 
• SACSE Bylaws 
• SACSE Meeting Notices
• SACSE Meeting Minutes
• SACSE Roster 
• Sub-Committees
  • DRC Committee
  • PDC Committee

National & International Links and Resources