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An eighteen smoking gun salute to you

Friday September 9, 2005

To:  Debra Rooney

Principal of the Mary Lyon School

To: Jean-Dominique Hervé Anoh
     Program Director at the Mary Lyon School

Debra Rooney:

An eighteen smoking gun salute to you.

I want to thank you and Herve kindly for the extended discussion yesterday about the use of restraints at the Mary Lyon School.  As with so many things in dealing with you, you at first deny or say anything you wish, but under extended discussion the truth starts to come out.

In our conversation, you and Herve, in detail agreed that restraint is used at the Mary Lyon School.  In fact you said I was common knowledge, and I should have known this.  Well now that I do and you admit it, I that much more strongly want my daughter transferred out of the Mary Lyon.  Of course as always, BPS will not respond to my requests.

This is interesting, because in our June 27, 2005 letter to you and Carol Lennon, BPS Assistant “Program Director,” asking for our daughter to be transferred out of the Mary Lyon School, we gave as the first reason that restraint is used there.  Now Carol Lennon wrote us a letter that said you categorically denied this then.  Now much the opposite is agreed upon.  Herve went in detail, about names of holds, disagreed with the types of holds that I mentioned, mentioned methods like CPI, TCI and so forth.  (Smoking gun number one.)

I find Carol Lennon’s wording interesting.  She passes the buck onto you Debra following the typical BPS practice of making sure the buck of responsibility is passed down, not up, should any things be exposed.  What a culture this is.  However, I am sure she knew.  In fact, I have found out this policy of the use of restraints at the Mary Lyon predates you, according to other parents and others I have talked to, so Mary Nash then certainly knew.

I asked Herve if he would use these methods on all students with disabilities at the school.  He said that well if the disability was blindness, then it would not be appropriate.  This shows ignorance of what would be appropriate for an Asperger’s child, and even my daughter.   He never said it would be inappropriate for my daughter.  This shows his ignorance, and his willingness to consider restraint on a five-year old girl.  In fact if restraint had never been used on our daughter, would it only be logical that he would have used her as an example under these circumstances, circumstance were her is trying to persuade me that restraint was not in fact used on my daughter.  An analogy with the blind child is apt.  My daughter is blind to understanding many social interactions.  His implications that these methods are appropriate shows total ignorance as to the sensitivities of this neurological disorder.  These approaches cause harm of a unique order to this set of children. To blame her for things she is incapable of comprehending and specifically to use punitive measures is basically abusive.  Herve, and clearly no one else at the school, seems to understand that.  Why was blindness chosen as the contrary case, and not children with these kinds of neurological disorders, this shows his blindness.  Expertise consistently agrees with me on this issue.  If he knew more about her disability, and was sure she was not restraint, why was not she used as an example of a contrary case?  The subtext is that Anaya was restrained and he feels it was legitimately done.  (Smoking gun number two.)

I find it very interesting that you would state that all parents who send their students to this school know that restraint is used there.  I said in reply that I did not know, how was I to know?  Did you pass around a letter?  Is it specifically stated somewhere?  At the same time, you seemed very concerned that other people, parents, would learn of this fact.  That my presence there would allow them to know this.  Your very concern proved the point that it is not only NOT generally known, but also you and BPS carefully work to make sure it is not known.  If you were not concerned about keeping this fact secret, why were you engaging me out there in a public place?  You seem concerned about this coming out, but not that children in that school have to endure the frightening scenes there that I witnessed.  One again you always follow a twisted logic.  You use the name of protecting the children really only to cover your posteriors. (Smoking gun number three.)

As for the specific use of restraint on my daughter, again I find your responses interesting.  When I insisted that I saw restraint used on my daughter with my very own eyes, Herve as is typical, always finds as many arguments as possible to reject the issues that you do not want to be true, even if they are true.  Here one of the arguments he brought to bear was that I did not see what lead up to the use of restraint on my daughter.  This is a very interesting approach to take.  He was not denying that restraint was used with my daughter, rather he only was saying that I could not understand that at the times it would have been appropriate.  Thus he is showing that he thinks the use of restraints is legitimate for her.  Even tacitly agreeing that it might have been done.  It shows total ignorance of her needs, who she is, her tinny stature, her only five-years of age.  In fact this is consistent with what I have come to understand, that the school uses restraint, not as a last resort, as you try to say, but as a consistent and regular policy, often at the most minor of needs.  This is what I saw with Anaya’s Kindergarten teacher Lynn Quinn.  It was quite clear that as far as she understood, that for the minor fussing my daughter was doing, restraint was the right and appropriate response.  It became clear early on last year that no one working with my daughter had any substantive experience or training Asperger’s.   I stated this categorically in our team meeting in October of 2004, of which your response was not to train staff, but to work to more solidly entrench her at the school and fight us. The lack of training is something no one ever has denied.  What I did not know then, is that instead of applying appropriate approaches, Lynn was using restraint as part of the methods that were made available.  Not only did the school miss what was right, it used what was wrong.  (Smoking gun number four.)

There is no credibility to your statement that restraint is used at the Mary Lyon as a last resort.  I have seen it, and other parents know that it is consistently used as an inappropriate and simple solution.  In other cases I have viewed the use of restraint on other children at the school, I could see no one in danger, no child capable of causing danger, only small young children screaming, usually suffering from the restraint itself.  There could be no purpose, but the misguided belief that this would change a child’s behavior for the better.  You should be aware that not even animal trainers recommend this form of learning.  My daughters IEP specifically states the requirement for positive approaches.  You clearly do not get it.  I figure if you feel comfortable about changing my IEP without informing me, they you equally feel no obligation to work within the bounds of it.   What value is it then?  I actually have no evidence that many of the services agreed upon were rendered at all.  But I do have plenty of evidence that the services that were rendered were done so by people who did not have the skills needed.  I have to ask you, why would you never allow me to talk to Anaya’s speech and language provider?  This in spite of the fact that this person should have been on of the point persons in her program.  This is quite suspicious.  Why would you not let our daughter’s psychologist train any one?  Why did you remove a psychologist from my daughter IEP without my permission?  You have no reasonable answers to these. (Smoking gun number five.)

Herve complained during our discussion that I should have come to him to talk about it.  Well in letter after letter I mentioned problems and BPS does not respond. 

And specifically in the letter I mentioned above I called the school to task for using restraint, but all my letters are methodically and systematically ignored.  I never heard from Bill Henderson as to the letter I sent to him before the one I sent to Carol Lennon.   When I finally got him on the phone a month later, all he said was he gave my letter to the legal team.  There is plenty of evidence that BPS has a policy of not replying, with only the legal team calling the shot.  BPS thinks of its legal defense from day one, rather then supplying its legally required support of special needs students.  (Smoking gun number six.)

As we have talked about in previous discussions, it was more than once reported to me that my daughter was heard screaming all the time at your school.  She does not do it at home, so this alone makes me wonder what you do at your school that makes her do this.  You never rejected this fact.  Interestingly you only said that I have no right to know this.  Again you logic is to protect you posterior and not any display of real concern for the children. (Smoking gun number seven.)

Why do you want her to return to this school?  You have never given a legitimate reason for this.  I have stated repeatedly, and you have agreed, that she emotionally fell apart at your school, a pattern that other children with similar profiles suffer at your school.  Yet you continually maintain it is the right place for her.  (Smoking gun number eight.)

There were many interesting things in this conversation.  At first you deny that my daughter was restrained.  Then you backed off and said that state regulations say that it can be used as a method of last resort.  Thus confirming my statement that it was in fact used with my daughter.  Herve said that they train their staff in restraint.  (Smoking gun number nine.)

It is interesting that you again deny that my daughter’s IEP was changed behind our backs, even when we have the paper trail to prove it was changed, you feel you can deny it.   This as in case after case, your credibility is called into question.  I saw you call your secretary to task for giving me the updated and changed IEP that I had never seen before.  It does not take a genius to know that you were in the loop on this.  (Smoking gun number ten.)

Well as our dialogue continued, and we started to discuss the specific fact that Lynn Quinn applied restraint techniques to my daughter, Herve insisted that Lynn knew what she was doing.  This is interesting.  Yes, she may have known how to apply a given method.   This in fact shows an agreement that she could very well have applied restraint to my daughter and repeatedly.  What is totally missing at your school is the knowledge that these are not appropriate methods for using restraint on my daughter and most likely many other students who have fallen apart at your school.  Never has anyone acknowledged this.  It is quite clear that you think these approaches are appropriate.  But not as last resorts, but as a key method of working with students. 

When I pressed Herve and you as to how was I to know that this school used restraint, that this was kept from me, you could not come up with an answer.  When I said I would have never sent my daughter to this school if I had known they use restraints, you had no answer.   Let us recall a meeting we had in the fall of 2004 where you stated that Anaya’s IEP was constructed so that she looked like a behavior problem in order to allow her to be placed at the Mary Lyon.  I could not understand the implications of this then, but now they are way beyond the pale.  Again the fact that BPS would do this shows a marked lack of interest in the well being of children and just basic ignorance.  Mixing Asperger’s and behavior problem kids is dangerous to the Asperger’s children.  (Smoking gun number eleven.)

I suggested that there is every reason to believe that the use of restraint on Anaya was a pattern, a repeated pattern as would be the case of a teacher trained to think this was an appropriate approach.  Anyone with even the most limited sensitivities would know that abusive interventions just provokes and makes students that much more frustrated and anxious.  This in turn gains more restraint.  The very method, does not deescalate, but in the long run only escalates the friction between the child and the teacher.  My daughter's falling apart was consistent with such an increasing cycle of conflict.  (Smoking gun number twelve.)

It is also interesting that Herve confirms that Anaya did have a breakdown, that her mental health degenerated, a pattern experienced by other students.  It is amazing you have not called into question your methods in general.  (Smoking gun number thirteen.)

However, once again you give the ludicrous retort that it was because toward the end, and let me say this was after she started to deteriorate, the ludicrous answer that that I stopped bringing her to school the full day.   I reduced her school day as I saw the horrible consequences of it.  This is one of the most audacious of your twisting of the rational.  (Smoking gun number fourteen.)

When I stated that you have training in restraint but not training in her needs, Herve dodge the question again.  He said that he had lots of training.  But really he did not address the need for specific training.  I do not care that he has two masters’ degrees.  I think it is a sign of ignorance that he should think that a masters in remote sensing would even remotely have value understanding spectrum disorders.  In fact, the very fact you stated last year that you needed to write an IEP for her that purposefully misrepresented her to be a behavior problem, makes it clear that your school is not knowable or represented as a school that understands her needs.  Even as further evidence of you ignorance, all experts agree that mixing Asperger’s students with those that have behavioral problem is a danger to the Asperger’s students.  The very fact that you put my daughter in a school where restraint is a key training, is just proof of your ignorance. 

Again when I brought up yesterday that at the last IEP meeting you stated that the school DOES need training, Herve dodge this.  He tried to claim that all they needed was some updating.  Let us not mince words. You all have no idea of what is appropriate for Asperger’s children in general and my daughter in particular.  You have tried hard in every way imaginable to cover this fact up, and again, as always, the truth has a way of working its way out.  I am really tired of the lies.  I am tire of harm being done to my daughter.  I would be happy at any time to have you offer a lecture as to what you feel is appropriate for these kinds of disabilities.  I challenge you now to a public discussion as to what you feel is appropriate for these students.  I know you will not accept all you can offer is misconceived and folk ideologies about this topic.  The only reason you are refusing to transfer my daughter out of the Mary Lyon is that BPS has no appropriate program for her, is unwilling to construct one for her, and wants to avoid a private placement at all costs.  (Smoking gun number fifteen.)

Herve did agree he was not an expert in Asperger’s, that he could not be an expert in everything.  I said that the school made itself out to have this knowledge, and if this were a business situation, it would be considered fraud.  He had no response to this.

I thank you kindly for calling off this important discussion at this time.  It seems that all you can offer is academic arguments.  Herve loves the philosophic debate, but I am still waiting for an appropriate education for my daughter.

You all should be ashamed of yourself.  All you have done is defend your turf and position.   At every turn that is all you do.  Not once have you shown concern for the plight of my daughter.

Just who do you think you are?  You clearly do not show the integrity that any parent requires to trust their child to another indevidual.

What I see here across the board at BPS is a pattern of attempting to take advantage of special education parents and children at every turn.  I must say it is one thing to fight with parents, but to take actions that do harm to children in order to save money as so many of the issues I have called the school to task for boils down to, this is both contrary to law and human decency.

How dare you stand in the way of my daughter having a decent future, with your endless bureaucratic games, lies, deceits, manipulations.  Then add to that abuse, which you do not even have the knowledge to recognize as abuse.  Then there are the people above you, who insist at every turn this is the right place for our daughter, not on any grounds of fact, but on cost and face saving bureaucratic expedience.

However, this would be too kind.  I believe I am speaking correctly, when I state that they wish parents of children with special needs would simply go away.  In fact there is evidence that making them do so is one of BPS’s strategic goals.

When we were going to choose a school, Aida Ramos the other Assistant “Program Director” insisted, with the most offering smile she could muster, that the was the right place for my daughter, but only was willing to show it to us after the school year ended, and insisted she stand guard as we spoke with the kindergarten teacher and than after Mary Nash.  Even then it was evident that both the kindergarten teacher and later Mary Nash showed marked ignorance about what appropriate for this disability.  (Smoking gun number sixteen.)

There was of the more interesting things that you said yesterday in response to my concern that restraint was use on my child was that when we sent our child to the school we knew that it was a school which uses restraints.  The subtext is obvious.  You were defending the use of restraint on my child by saying I gave tacit approval to it by sending my daughter there.  This is an outrageous defense. (Smoking gun number seventeen.)

Finally, when I said to Herve, you have no right to allow a perfect stranger to put their hands on my daughter.  His response was, she is not a perfect stranger she is Anaya’s kindergarten teacher.  Well there you go.  That nails it. (Smoking gun number eighteen.)

There is nothing other to conclude, but that my daughter was restrained, repeatedly, and not just in the instance I saw.  You all knew about it and supported it.  A five-year old girl, that could harm no one, was restrained, a girl far intelligent enough that you could have reasoned with her, intelligent and sensitive enough to be deeply emotionally wounded by these actions, a little girl that wants to look up to and love and earn the respect of her kindergarten teacher, who instead was manipulated and tormented in a horrendous way to support your egos and foolishness. And this my dear friends is abuse.

My foolishness was that I trusted you all, my mistake was I gave you all the benefit of the doubt, my mistake was to think that these public servants would have the interest of my child in mind, my mistake was to think that they would never harm children, my mistake was to put trust where trust was not due.  Yes, thank you, you tricked us into placing our daughter in a place that is not right for her.  And now you will not right the wrong.  Exhausting parents is your modus operandum.  What culture, what threats from superiors, what confusion as to what is moral and just, allows you all to make these choices in your life, and you want to teach our children, teach our children to make the right choices, you want to direct the education of our children, you want to instill in them the values that are contrary to all the great teachings, accept maybe Machiavelli and his like.  Children learn more from the culture of the adults they see around them, then what is in their lesson books.  In this instance you have failed all of Boston.  Yes, these children may pass their standardize tests, but what kind of citizens do you want?   Are you stewards of the future of this great city, our precious young gems in this great city, or are you just protectors of your near and above six figure salaries given to you in trust by the very parents who trusts you violate an a daily basis, parents who give you their children in trust to you.  If I had given my daughter in trust to a baby sitter, only to find that she had been covering up my daughter’s screams and anxieties in reaction to her “care”, and saw my daughter fall apart in her hands, and saw her use methods I would never use on my child, every parent would say, it is time to revoke that trust.

In all the discussions I have had with you, never have you ever seemed concerned for my daughter, never have you even been willing to enter into a dialogue as to how to make things better, at every turn it is simple denial that anything is wrong.   Let me correct this, before the BPS Special Education Central office got involved, you did show some humanity.  I wonder what they did to you to change you so drastically.

However, from everything I have seen, at this time ignorance, arrogance and maybe even fear of reprisals from above, reaches to the core of everyone I have mentioned in this letter.  And the smoke from the guns that clearly points to my daughter’s restraint and abuse are making me gag and feel sick.  It is time that the white wash and the rosy scenarios start to peal away so the fish that rots from the head down is exposed to the scrutiny is deserves.

Fondest regards,

Barry Grushkin

© Barry Grushkin 2005 All Rights Reserved. Reprinted with Permission.

5 Year Old with AS Restrained

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